Hi Miriam,
Here are some examples I have used when speaking of my condioitn (asthma):
I have this condition that is called asthma
I have this thing that doctors call asthma
Sometimes I mispell the word when writing: asthme (does not have the same power anymore!)
I speech I usually use a hesitant tone of.. err... asth -ma (raising the intonation as if it was a question, not wanting to make it too definite!)
I guess you could use same kind of tehcniques when spaking of your condition.
I wish you the best healing experience!
[He].2s2.2p4